CI Survey

Welcome! Please begin answering the questions below to the best of your knowledge.

ABOUT YOU AND YOUR BACKGROUND

1. The highest education level my mother achieved is:
2. The highest education level my father achieved is:
3. My mother earns:
4. My father earns:
5. English is hard for me:
6. Using sign language is hard for me:
7. Lipreading/Speechreading is hard for me:
8. People understand me most of the time when I speak:
9. I live:
10. I am from which country:
11. I heard about this survey from:
12. If you heard about this survey from a website, what website was it?
13. I was born in the year:
14. I am:	American Indian or Alaskan Native Asian Black Native Hawaiian or Pacific Islander Hispanic or Latino Not Hispanic or Latino White Other
15. I identify as:
16. From 0 (a little important to me) to 5 (very important to me) I feel my identity is:
17. My mother identifies as:
18. My mother is:
19. My father identifies as:
20. My father is:
21. My deafness is ____ for my family to accept:
22. Deafness has negatively affected my ability to get or keep a job:
23. Deafness has negatively affected my ability to benefit from my education:
24. My implant has matched the expectations I had before surgery:
25. Someone should have told me about ____ before my CI surgery:
26. The language I learned first is:
27. If neither English nor ASL is my first language, then my first language is:
28. The language I use most often now is:
29. If neither English nor ASL is the language I use most often now, then the language is:
30. My education experience as a child is best described as:
31. If I had hearing aids before, I liked them:
32. I am:
33. I feel comfortable in the hearing community:
34. I feel comfortable in the Deaf world:
35. How many people live in my household?
36. How many children/dependents do I have?
37. I live in:
38. On a scale of zero (least happy) to ten (most happy), right now I feel:
39. On a scale of zero (least happy) to ten (most happy), for most of my life I have felt:
40. I am:

ABOUT YOUR EDUCATION AND WORK

41. My highest educational level is:
42. I earn:
43. My primary job best fits which category:
44. My high school GPA is:
45. My college GPA is:
46. After graduating from high school or college, it took me ____ to find a job:
47. I feel that cochlear implants are:
48. The year I first entered high school (0000 if I didn't go to high school):
49. The year I first entered college (0000 if I didn't go to college):
50. The year I graduated from high school (0000 if didn't graduate):
51. The year I graduated college (0000 if didn't graduate):
52. My favorite subject in high school was:
53. My major in college is/was:
54. If I work, there are ____ deaf/hard of hearing people at my workplace:
55. If I work, I work ____ hours per week (0 if don't work):
56. My work income is:
57. I am paid fairly and not less because I'm d/Deaf:
58. I receive government disability benefits or support from the government:	Yes, I collect SSDI Yes, I collect SSI Yes, I have DOR (Formerly VR) Yes, I get SSI and SSDI Yes, I collect SDI (State Disability) Yes, I get another benefit No, I receive no support
59. I am:
60. For college, I attended:	Did not go to college A first-tier university (first-tier university list) CSUN Gallaudet Rochester Institutute of Technology (without NTID) Rochester Institute of Technology (with NTID) Other
61. I have received ___ job promotions in the past five years:

ABOUT YOUR DEAFNESS

62. I became deaf at age:
63. My deafness is caused by something in the brain or I have a complication that affects my ability to use the implant:	Yes No
64. I had hearing aids before my cochlear implant and used my hearing aids ____ hours a week:
65. If sickness or infection caused my deafness, it was ____.
66. My deafness is caused by:
67. I have another disability besides deafness:
68. If I have another disability, my other disability is ____.

ABOUT YOUR IMPLANT

69. I have:
70. To have an implant, the most I can and would pay per month is (Dollars):
71. My implant is made by (if two implants, implant in left ear):
72. My second implant (right ear) is made by:
73. My processor software I use most often is:
74. My implant was activated in the year:
75. My implant has ____ active channels (0 if don't know):
76. The person who made the decision for me to get an implant is:
77. Who paid for my implant?
78. What motivated me or my parents to get an implant?	Ability to be aware of sounds in the environment Ability to learn to talk Ability to interact with others while lipreading and listening Ability to understand speech Ability to hear music Other N/A
79. Now that I have an implant, I communicate most often in:	American Sign Language English-based sign Speech and sign at the same time Speaking
80. How I communicate when I am using my cochlear implant:

MORE ABOUT YOUR IMPLANT

81. Every week, I have ____ hours of Auditory-Verbal (AVT) or other training for my implant now:
82. Around the time I got the implant turned on I had ____ hours of AVT or other training every week:
83. In the past I had a lot of AVT or other training:
84. I need more AVT or other training to learn to listen better with my CI:
85. Every week, I use my implant ____ hours:
86. I think my audiologist is:
87. I should have my implant remapped
88. I feel good about my implant:
89. Every day, I have ____ sound to listen to:
90. Before the implant I could, with my hearing aid:	Did not use hearing aid Be aware of sounds around me Hear my voice/voice of others Understand a few sounds and words Understand patterns of speech (short vs long sounds, loud vs quiet sounds, questions vs statements) Understand a few words when aware of the topic Understand many words in most situations Understand sentences with almost no problem (and no lipreading)
91. Before the implant, I could hear without any devices:	Nothing Be aware of sounds around me Hear my voice/voice of others Understand a few sounds and words Understand patterns of speech (short vs long sounds, loud vs quiet sounds, questions vs statements) Understand a few words when aware of the topic Understand many words in most situations Understand sentences with almost no problem (and no lipreading)
92. With my implant, I can hear:	Nothing Be aware of sounds around me Hear my voice/voice of others Understand a few sounds and words Understand patterns of speech (short vs long sounds, loud vs quiet sounds, questions vs statements) Understand a few words when aware of the topic Understand many words in most situations Understand sentences with almost no problem (and no lipreading)
93. With my implant and the telephone, I can:	Recognize a busy signal on the telephone Recognize a voice on the telephone Able to use the telephone for basic conversation Able to use the telephone normally
94. I wish I never got this implant:
95. Given what I know now about implants, would I get the implant all over again?
96. Why would/wouldn't I get the implant all over again?
97. My cochlear implant has improved the quality of my life:
98. On a scale of 0 (not valuable) to 10 (very valuable) the Cochlear Implant is worth a lot of money to me:
99. I interact with hearing people ____:
100. Getting an implant created unforseen complications:
101. Hearing people don't understand that I don't hear like hearing people with my implant:
102. How the cochlear implant helps me with my social, family, and working lives:
103. I like my cochlear implant most in these situations:
104. I don't like my cochlear implant in these situations:
105. In general, my life has changed in this way, with my cochlear implant:

ABOUT YOU AND DEAFNESS

106. The most I can and would pay every month to keep Deaf Culture is (Dollars):
107. The heroes in Deaf Culture are important to me (Dummy Hoy, Laurent Clerc, Anthony Natale, etc.)
108. I interact with d/Deaf people often:
109. I feel it's important for d/Deaf people to keep open communication with each other always:
110. If a d/Deaf person is not open and honest with me, I feel more hurt than if a hearing person is not open and honest with me:
111. I prefer it when other people use ASL, even when I'm not around:
112. Without ASL, I feel the world is worse off:
113. I feel comfortable telling people something that might embarass them:
114. I feel uncomfortable if someone tells me something that I feel embarassed about:
115. I have a lot of Deaf Culture pride:
116. I think it's important for others to have more Deaf Culture pride:
117. Deaf Culture has added value to my life:
118. Deaf Culture helps create more job opportunities for me:
119. Deaf Culture and CIs can exist together:
120. On a scale of 0 (not valuable) to 10 (very valuable) Deaf Culture is worth a lot of money to me:

Thank you for filling out the survey! Click the button to submit your answers.

Questions?

Email: survey@deafsurvey.com

The Economics of Deafness and Cochlear Implants

CI Survey

ABOUT YOU AND YOUR BACKGROUND

ABOUT YOUR EDUCATION AND WORK

ABOUT YOUR DEAFNESS

ABOUT YOUR IMPLANT

MORE ABOUT YOUR IMPLANT

ABOUT YOU AND DEAFNESS

Questions?